Originally posted by BIG_GEORGE
Hey All,
Sept.17th will be Big George's end of the summer poker run to benefit Karen & Jimmy Hahn!! Jimmy & Karen have been Iron Horse family from day
1, & when a family member needs help we answer the call!! Karen has given me permission to share the e-mail she sent me so everyone can better
understand what's going on with her condition! I will list the details about the run at the bottom of this post after Karen's e-mail!
George,
I can’t thank you enough for all you are doing to help Jimmy and myself while we are going through all this. You are all heart babe. As for my
brothers band,
His response when I talked to him was that it seemed we had a full bill, and it was fine for his band not to play that day. He will be there to help
Jimmy with the band switches and such.
Now, as for the about me,
I’m 44 years old, and have had poor health most of my life. To date I’ve had approximately 15 surgeries, and after seeing the Dr. Thursday after
talking with you, the 16th surgery will be on Tuesday to repair my bladder which did not heal right after being operated on in January.
My current illness is a difficult one to explain, as we have not yet found the cause of all the symptoms I am having. I have been diagnosed as having
Postural Orthostatic Tachycardia syndrome (POTS) which is a group of symptoms including excessively fast heart rate, and a severe drop in blood
pressure when standing, and occasionally fainting due to the blood pressure drop. We have found that this may be caused from a lack of oxygen in the
blood due to a 20% loss of blood plasma which is the fluid in the blood. I am extremely dehydrated because my body is not absorbing the fluid that I
take in. The kidneys are taking all the fluid in order to rid the body of what it needs to, therefore the blood is starving for fluid. The cure for
this will be surgery number 17 where they will need to insert an IV line into my chest so that I can give myself IV fluids directly into the veins at
home. This will fix the dehydration problem, but may or may not help the POTS. Also due to the fluid loss, which creates an oxygen deficiency in the
blood, I am suffering a lack of oxygen to the brain which is causing memory loss, confusion, and mini strokes. I often get lost when trying to get to
places I’ve been hundreds of times, and am unable to remember peoples names, (including my own) at times. Yesterday I got lost driving around the
block.
I also am suffering from a digestive disorder which for 6 years now they have been unable to diagnose. It causes me intense abdominal pain for 1-3
hours a day which mimic Labor pains. This happens almost every day and sometimes twice a day.
I so far have had to have a heart ablation to try to stop the rapid heart rate which is where they go in through a vein in your thigh up into your
heart and use sound waves to burn out the receptors in the heart which control the rate. This was unsuccessful as while doing the procedure my heart
began racing at 250 beats a minute and was unable to keep rhythm. At that point if they had continued they would have had to kill off all receptors
leaving me with a pace maker. It is possible that I will still have to have that done. It is the recommendation of the cardiologist, however I am
attempting to find the cause before we have to take such drastic measures. This procedure alone cost $25,000. Recently Ive had an MRI of the brain,
and will also be seeing a Neurologist. I don’t even want to know how much that one is going to be.
I also have been to the Cleveland Clinic where I’ve had numerous testing done to check my blood volume and Systemic Autonomic Nervous System. Blood
volume testing showed the blood deficiencies above and the nervous system testing showed a problem with the brain getting the message through to the
extremities. The testing also showed a low cardiac output which means the heart is not beating hard enough to pump the blood out of my legs so that
when I stand, all the blood pools in them and cant get back up into the heart to replenish its oxygen supply. This is why the blood pressure drops
when standing.
The bills are just now starting to come in, and since I am no longer able to work more than a couple hours a day (against Dr.’s advice) Jimmy is
having to work non stop, to try to make up the difference in our income, but there is no money to pay the Dr. bills. We do have insurance, however
that doesn’t cover everything and our share alone is going to be well over $10,000. Between the 2 Cardiologists, the Nephrologist, the Cleveland
Clinic Syncope lab, the Urologist, the Neurologist, my own Doctor, and whoever else they will be sending me to… I live in a waiting room.
I also have osteoarthritis in my spine and hips which is getting worse with my health failing. There is also severe arthritis in my feet, and very
soon (probably within the year) I will have to have all the bones in my right foot fused together in order to support my body weight. I’ve already
started breaking bones due to the weakness in them, and have had 2 surgeries on it already trying to repair the broken bones.
I do have 3 sons, one is doing what he can by making sure he buys his own food, but his limited income isn’t able to do more than that. My youngest
son is severely Bi-Polar and I have always cared for him as he is unable to find work due to his condition. And being 21 years old he eats like you
wouldn’t believe.
My other son is also Bi-Polar and not currently working, he has just moved back home in order to take care of the housework and cooking for me so that
I can rest and concentrate on getting well. God Bless him he has also found a job and intends on helping out with the household bills so that Jimmy
can slow down a little before he ends up with a heart attack which would really mess things up.
Needless to say, Im a mess. Again, George, I love you man, you have shown me more love, encouragement, and self sacrifice than I have ever experienced
in my life. Usually when people know about my condition, they assume Im a hypochondriac or worse, just avoid me, and you have always been there with
open arms ready with a big hug and genuine concern. I cant tell you how much that means to me.
Karen
I'm trying to get as many people invovled as I can! So,if anybody has any suggestions about raising money to help
Mr. & Mrs. LoneWolf feel free to share them!! I'm trying to get Jack Daniels,Jager,Budweiser,& Miller to donate stuff for a auction the day of
the run!So,if anyone wants to donate stuff to be auctioned off that will help too!!
I will post more details to this thread as they come together!
This is what I know right now!!
Sept.17,2005 @ Big George's Bar & Grill in Plain City,Ohio
We will be opening @ 9:30a.m.,& registration for the run will be from 10:00a.m. - 1:00p.m. with a $20.00 fee per rider!There will also be a 50/50
raffle at each bar to try to raise extra money!!
When everybody returns to my place there will be a hog roast with all the trimmings, & 4 bands with LoneWolf doing the sound!(Band times still to
be announced!)I hope there will be some other surprises too,but I can't tell you everything just yet! I will share one BIG SURPRISE with you though!
Iron Horse will headline this show along with Karma10,Nevada Smith,& Bad Influence!!What a awesome evening this is going to be!! The guys jumped
right on board when I went to them with this idea,& all of the bands are donating there performances out of respect for Jimmy & Karen!Very
cool of all of them to be so willing to do what they can to help out! Class acts all the way!!
I also believe there will be a leather vendor,patch vendor,& maybe a tattoo artist also!I'm also trying to get the Jack Daniels & Jager Girls
to attend!!So,there will be plenty going on with the best dam band in the land closing the show!!
One last thing,if you ride in the run! The $20.00 reg.fee covers the ride,hog roast,& the 4 bands!If you just show up for the hog roast &
bands there will be a $5.00 cover charge!!Also,you don't have to have a motorcycle to be in the run,cars are welcome too!!The more people that
reg.,the more money for Karen!!I believe 1st place will pay $500.00!!
THIS IS THE DATE REGARDLESS OF THE WEATHER!!RAIN OR SHINE IT'S ON!!!!
If anyone has any questions ask away!! This will be a special evening!So,come out support Jimmy & Karen & welcome the guys back home to P.C.!!
Thanks For Your Time,
Big George
[Edited on 6-6-2005 by BIG_GEORGE] |